Our Altogether Autism experts, advisors, researchers and our extended autistic community are gathering resources to help us through the COVID-19 pandemic. Please follow the COVID-19 website for updated resources.
Please share your resources with us.
New Rochelle, NY, May 21, 2020—What is “autistic burnout,” a term frequently used by autistic adults? Its characteristics, and what may cause or alleviate it, are discussed in Autism and Adulthood.
Autistic adults use the term to describe a chronic state of exhaustion, loss of skills, and reduced tolerance to stimulus. These characteristics are long-lasting and permeate people’s lives. Read more
Transport Survey – very short and quick!
Transport researcher Bridget Burdett is exploring disabled and non-disabled people’s travel during the Covid-19 Alert Levels 3 and 4.
You are invited to complete the following web survey. The survey has six questions. It should take less than five minutes to complete.
Please feel free to share the link with your friends and networks.
Transport survey: https://www.surveymonkey.com/r/57FHS7J
Calling 111 when you’re in danger but can’t talk
- Call 111 if you or someone else is in danger or could be harmed
- If it’s not safe for you to speak, stay silent, push 55 and you will be put through to Police
In our bubbles, no matter what…Any kind of family violence or abuse is still not OK. The safebubble website is Safe Bubble
Facebook has set up a Coronavirus (COVID-19) Information Centre with New Zealand specific information.
- A new digital platform created by Māori organisations is helping to support Tamaki Makaurau’s more vulnerable whānau during the COVID-19 pandemic.
Paerangi (www.paerangi.nz) is an online information and referral centre designed specifically for whānau hauā (whanau with impairments), nga marae and kaumātua. There is also a support/information phone line (0800 100 132).
- All children and young adults require support from caregivers during times of stress and uncertainty, such as those we are facing now with the spread of the coronavirus (COVID-19). Coping with the unknown and navigating school closures, abrupt changes in routines, loss of connections with teachers and friends, and fear around contracting the virus- are burdens for all, and caregivers play an important role in helping children and young adults understand the changes and process their related feelings. Individuals with autism may need additional support to process the news and adapt to the many changes. The following seven support strategies are designed to meet the unique needs of individuals with autism during this period of uncertainty. Read more
- Astronaut Chris Hadfield provides four useful steps to productive self-isolation.
Join a virtual classroom
- With school closures around the world, Canva is supporting teachers, parents, and students when it comes to adapting to distance learning. Canva has thousands of free templates and resources that you can use to plan lessons and keep students engaged and empowered. See more
Find inspiring resources
- Talking to Kids about Covid- 19 (Getting through together) https://www.allright.org.nz/articles/how-to-talk-to-your-kids-about-covid-19
- Home exercise options (options for all ages) https://www.sportwellington.org.nz/assets/Resource-Documents/ee07e7e1c1/Home-exercise-options-v2.pdf?fbclid=IwAR3tHsm_aHOzl8RWDI3HwKcU4ji6r9V_0hJ731CrE5mQliU1t3qTV04rMEU
- Follow the Sport New Zealand facebook page for ideas on how to stay active while staying close to home https://www.facebook.com/SportNZ/?ref=br_rs
- Details on how you can spend carer support / respite funding on a much wider range of supports and services. This might be a weighted blanket, an ipad or art materials, if this helps the parent or carer get a break.
- Coronavirus health and safety guide including various social stories in other languages (refer ‘other downloads’ section) – English, Arabic, Chinese, Russian, Spanish
- Coronavirus social story from Sue Larkey – (incl. areas to individualise according to your own circumstances); http://suelarkey.com.au/wp-content/uploads/2020/03/Social-Script.pdf
- Coughs and Sneezes; https://happylearners.info/social-stories/coughs-and-sneezes.html
The TalkLink Trust has put together some COVD19 resources on our website here https://talklink.org.nz/resources The first link https://talklink.org.nz/resources/resources-for-covid-19 includes Social Stories explaining about COVID19 and staying at home . The second link https://talklink.org.nz/resources/supporting-aac-use-at-home includes useful resources for home, including a number of visual supports for things like hand washing.
This information has also been placed on our Facebook page https://www.facebook.com/TalkLinkTrust/ and we will be regularly adding to the resources on our website. If there are other issues that you require visual supports or Social Stories let us know – we are happy to create more. Email
Free support apps available:
This app gives you the opportunity to reach out to an online community of Kiwis who may be experiencing the same thoughts and feelings you are, while also providing a health journal, self-awareness tools and other useful resources.
Melon’s also going to be updated with additional resources for our teens and young adults in the coming weeks, so if you’re a parent or young person keep an eye out on this app for some content specifically created for you.
Explore Behaviour Support
In recognition of the ways the lockdown might be affecting us, Explore Behaviour Support has new ways of offering support.
Their behaviour specialists are providing immediate well-being and behaviour support advice, risk assessment and safety planning to anyone eligible for disability support services. You do not need a referral from your Needs Assessment and Service Coordination Services (NASC) to access these services, however, you will need to identify your NASC when you contact Explore.
Disabled people, their whânau and support workers can contact Explore directly by calling 0800 000 421 between 8am and 8pm, Monday to Friday.
If you are not sure who your NASC is, or if you are eligible for disability support services, check the Ministry of Health information here or contact us by live chat, email or phone.
Learning from home resources has a great range of links.
Guide to online resources for kids – an RNZ article, a comprehensive guide to online resources for children to learn, have fun and explore at home.
Sue Larkey written an article on using social scripts to help students with autism understand Coronavirus as whānau may need to write their own based on their own routine disruptions.
The Ministry of Education website also has some helpful links.